Friday, February 23, 2007

It takes a family

This poignant NY Times article (free registration required) speaks to how a young lady can help a disabled sibling-- or in this case, two siblings. Tarah is 14, and her autistic twin brothers are 16:
Yet while she may call them names and run off to church dances, Tarah also wonders whether she might one day become her brothers’ caretaker. The Perrys haven’t made concrete plans for Justin and Jason, and since the boys are still maturing, it remains to be seen just how independent they’ll become. “If they end up living with me, I’m going to make them get a job and have some responsibility,” Tarah says. “That way, they wouldn’t be just sitting around the house playing video games all the time. Then I’d take what they earn, and some would go to keeping house and some to buy them more video games.” They could maybe work at Gamestop, their favorite store, she says.

There's a lot of focus on the "Sandwich Generation" seeking better ways to care for elderly parents, preferably helping them live independently as long as possible-- "aging in place" as it's called.

But another story is how siblings and other family members help disabled adults-- young to old-- also live safely yet with some independence, and most of all with dignity.